For patients, relatives, caregivers & professionals
At Vesper Bio, we understand that FTD affects the lives of patients and their families in profound and devastating ways, making normal life all but impossible. We are striving to bring a product forward with the aim of halting this terrible disease. Along the way, we know that families need education, support and connections with the FTD community to live the highest quality of life possible.
What is FTD?
Frontotemporal dementia (FTD), also known as frontotemporal lobar degeneration (FTLD) is a group of brain disorders that cause degeneration in the frontal and temporal lobes of the brain. FTD impacts a person’s behavior, judgement, communication and ability to participate in all activities of daily living. It is the most common cause for dementia for people under the age of 60. Today, there is no cure for FTD, but there is help. By connecting with the larger FTD community, families will learn that they are not alone. Opportunities for education, support and research engagement will help families live the highest quality of life possible, building hope that the cure of tomorrow is not so far from the care of today for FTD. Learn More About FTD
FTD Education and Support
Association for Frontotemporal Degeneration
The Association for Frontotemporal Degeneration is a non-profit organization based in the United States that has a mission to improve the quality of life of people affected by FTD and drive research to a cure. They offer information, educational events, online and in-person support groups and a Helpline. Resources are tailored to meet the needs of persons living with a diagnosis, family caregivers and healthcare professionals. AFTD’s YouTube channel offers free educational videos and webinars to guide families and professionals on topics related to living with FTD.
Rare Dementia Support
Rare Dementia Support offers specialist social, emotional and practical support services for individuals living with, or affected by, a rare dementia diagnosis. Our vision is for all individuals with, at risk of or supporting someone with one of these forms of dementia to have access to information, tailored support and guidance, and contact with others affected by similar conditions. RDS welcomes people from all areas of society affected by a rare dementia regardless of gender, age, marital or family status, race, ethnicity or sexual orientation. They are able to offer free support to individuals in the UK and nationally, hoping to share the experiences of those living with rare dementias, including FTD, and the carers who love them.
Voices of FTD
Katie Brandt is a speaker, advocate and educator in the areas of caregiving and the impact of young-onset dementia on families. Katie lost her husband, Mike, to FTD when he was just 33 years old. Since Mike’s passing, Katie has made it her mission to raise her voice in honor of Mike and on behalf of families today who are walking the journey of life lived with dementia.
​
Remember Me Podcast
With every episode of the Remember Me podcast, co-hosts Maria Kent Beers and Rachael Martinez encourage listeners and all those who are care partners, family members and loved ones of persons with FTD to preserve and cherish their memories, and always accept the good.
Through Remember Me, Maria and Rachael have found and provided comfort through building a community around storytelling while creating oral keepsakes that honor the lives of persons with FTD. Parents, siblings, children, and spouses from all walks of life have shared the memories and experiences of their loved ones on the podcast while also taking a moment to tell their own story of how FTD has impacted them.