HUMAN VOICE | Vesper Bio

FRONTOTEMPORAL DEGENERATION, OR FTD, IS A GROUP OF BRAIN DISORDERS CAUSED BY DEGENERATION OF THE FRONTAL AND/OR TEMPORAL LOBES. FTD AFFECTS A PERSON’S BEHAVIOUR, LANGUAGE, JUDGEMENT, COMMUNICATION - MAKING IT DIFFICULT TO PARTICIPATE IN ACTIVITIES OF DAILY LIVING. MOST PEOPLE DIAGNOSED WITH FTD ARE UNDER THE AGE OF 60.

GETTING AN FTD DIAGNOSIS IMPACTS THE WHOLE FAMILY. THE PERSON WITH THE DIAGNOSIS IS FIRST IN LINE TO ALL THE CHANGES THAT FTD CAUSES, BUT IT HAS A HUGE IMPACT ON THE FAMILY. OFTENTIMES IT IS A CLOSE RELATIVE WHO TAKES ON THE RESPONSIBILITY OF CARING FOR THEIR LOVED ONE.

BEHAVIOURAL VARIANT FTD (BVFTD)

CHARACTERISED BY NOTICEABLE SHIFTS IN PERSONALITY, REDUCED MOTIVATION, AND A STEADY DECLINE IN SOCIAL BEHAVIOUR, DECISION MAKING, IMPULSE CONTROL, AND EMPATHY.

AMYOTROPHIC LATERAL SCLEROSIS (ALS)

ALSO KNOWN AS MOTOR NEURONE DISEASE (MND), AFFECTS THE NERVES CONTROLLING MOVEMENT, SPEECH, AND SWALLOWING, AND CAN CO-OCCUR WITH FTD, ESPECIALLY THE BEHAVIOURAL VARIANT.

PROGRESSIVE SUPRANUCLEAR PALSY (PSP)

IS A MOVEMENT RELATED CONDITION THAT CAN OVERLAP WITH FTD, OFTEN BEGINNING WITH BALANCE ISSUES, FALLS, AND MUSCLE STIFFNESS.

CORTICOBASAL SYNDROME (CBS)

IS A PROGRESSIVE BRAIN DISORDER THAT OFTEN BEGINS WITH MOVEMENT DIFFICULTIES, TYPICALLY AFFECTING ONE SIDE OF THE BODY.

PRIMARY PROGRESSIVE APHASIA (PPA)

IS A FORM OF FTD WHERE LANGUAGE DIFFICULTIES ARE THE MAIN EARLY SYMPTOM AND IS COMMONLY SPLIT INTO THE SEMANTIC, NON-FLUENT OR LOGOPENIC VARIANT.

CHARACTERISED BY NOTICEABLE SHIFTS IN PERSONALITY, REDUCED MOTIVATION, AND A STEADY DECLINE IN SOCIAL BEHAVIOUR, DECISION MAKING, IMPULSE CONTROL, AND EMPATHY.

”WE AT VESPER BIO UNDERSTAND THAT LIVING WITH FTD IS OVERWHELMING IN SO MANY WAYS FOR BOTH PATIENTS AND THEIR FAMILIES.”

JAKOB FALCK HANSEN, CEO

WE OFTEN HEAR THAT IT IS A LONELY JOURNEY BEING A CAREGIVER TO SOMEONE WITH FTD. BUT IT DOESN’T HAVE TO BE. THERE ARE SOME GREAT COMMUNITIES WHO ARE ABLE TO PROVIDE LOTS OF SUPPORT, ADVICE AND PERHAPS EVEN GUIDANCE TOWARDS OTHERS THAT YOU MIGHT CONNECT WITH.

WE IN VESPER BIO ALSO LIKE TO ENGAGE WITH THESE COMMUNITIES AS THEIR EXPERTISE WHEN IT COMES TO LIVING WITH FTD GIVES A VERY CLEAR AND HEART TUGGING PICTURE OF THE DEVASTATION IT IS TO HAVE FTD CLOSE TO YOU AND GIVES US THE MOTIVATION TO CONTINUE OUR WORK. PLEASE LOOK TO THESE SUPPORT GROUPS: